anyone else with CVI? What to do for it.

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Topic Title: anyone else with CVI? What to do for it.
Created On: 05/16/2001 09:15 AM

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 12/25/2002 10:27 PM

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glen532

Posts: 15

HI ... I TO HAVE CVI AS FAR AS I KNOW I WAS BORN WITH IT BUT I HAD MY FIRST BLOOD CLOT IN DEC. OF 1989 AND I'VE HAD 2 VEIN STRIPPINGS DONE.. SEVERAL CLOTS SINCE THEN,HAD TO QUIT WORKING IN 1999 BECAUSE OF VEINOUS ULCERS AND SEVERE PAIN,TOOK ME 1AND A HALF YEARS TO GET ON DISABILITY EVEN WITH LAWYERS HELP,BUT THEY SAY MY CONDITION IS ONLY TEMPORY[HA!HA!] BUT THEY HAVEN'T BEEN BATTLEING IT AS LONG AS I HAVE ,IM UP FOR REVUE AND WHO KNOWS I WILL PROBALY HAVE TO FIGHT TO KEEP IT..... I AM ONLY 36 AND IVE TRIED EVERY JOB THERE ISIN MY AREA ..
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 06/13/2002 08:26 PM

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user16443

Posts: 27

Sorry, I just saw a bad typo in my post. It should start out saying "I can't say..." - not "I can say". Obviously, there's no possible way that could profess to know what would and would not work for you. I'm sure that was misleading and I apologize for the oversight.
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 06/13/2002 07:34 PM

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LaurieS

Posts: 15

You obviously seem well read on the subject and I appreciate the information on your specific leg exercises. I will try them for sure. I would definitely like to chat with you if possible via personal email. So whenever time permits, I would enjoy hearing from you. Thnx again.
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 06/13/2002 06:35 PM

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user16443

Posts: 27

I can say that what works for me would work for you but the theory behind my actions is that if the deep veins are refluxing, then making the surrounding muscle larger and firmer would provide added support for the vein walls to reduce dilation. Obviously, this would have less affect on post thrombotic limbs where there is valve damage. The build the muscle I do standing calf raises for the gastrocnenius muscle and seated calf raises for the soleus muscle. I also do hamstring curls in the laydown position. I work 'em hard - very hard such that the pain from the muscle fatigue is almost unbearable (the pain subsides quickly). I also purchased a magnetic sleep pad almost 2 years ago as kind of an act of desperation. The theory there, so I have read, is that every cell in our bodies, except for the central nervous system, is replaced at least once in a 2 year period. Although it's a long shot, I thought I'd try it. I can't honestly say that it has been responsible for my improvement but I can't say it hasn't either. One thing is for sure - it has reduced the post exertion pain from the intense workouts to almost zero. It's an incredible device. I'll send you a private email sometime if you wish to discuss this further.
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 06/13/2002 07:30 AM

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LaurieS

Posts: 15

Thank you for your post. I too have been diagnosed recently with Veinous Insufficency. I'm a 42 yr old. female --very active and find this very disconcerting that there is essentially no cure. Like you, I am a believer in alternative methods in healing but have yet to discover any yet. My pain is in both legs from the quads down. Would you pls tell me what specific legs exercises you think might be helpful to strengthen the values? Also, would it be possible to communicate with you via email? My address is Thnx.
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 06/11/2002 08:24 PM

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LaurieS

Posts: 15

Renee, Thnx for your post. I too was given the same rx for veinous insufficiency...support stocking and *your on your own*. Never heard of such a treatment. Like you, I feel there may be some alternative treatment. I was just diagnosed so Im just beginning my research. Let's compare notes..Feel free to email me at
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 03/01/2002 02:45 PM

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user16443

Posts: 27

I'm a 39 year old male with DVI in my lower right leg. It became apparent about a year ago and was confirmed by doppler a month ago. Last summer, my foot would turn red if I stood still for even a few seconds but I find that it's not as bad now as it was then. Here's what I've done... ELEVATE often. Every chance I get my feet are up. I work on a computer all the time and now I put my feet on my desk with the keyboard on my lap. Intense excercise. I startiing working my calves with a body builder's approach, the theory being that, since the deep vein is encased in muscle, building the muscle should provide better support for the vein and help prevent dilation and promote better valve closure. My problem is not DVT related and, so far, this seems to be having a positive affect. I'm not talking about casual exercise - I mean work 'em till you feel like screaming. Never stand still and never sit still. The idea is to always have the calf muscle pump working when the legs are not elevated. The goal is to prevent venous hypertension. Most importantly, stay focused and determined to prevent worsening and continue to search for a doctor who is interested in looking for ways to help instead of just giving you the doom and gloom response. If you believe everything you read, CVI will not go away. If that is true, then the next best thing is to prevent ulceration by minimizing venous hypertension. It means a radical lifestyle change but it's better than being in misery. For me, so far it's working.
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 12/04/2001 09:03 PM

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notshown

Posts: 1369

I too have been diagnosed with CVI. Mine problems are the result of DVT. One just within the last year. I am 49 years old and have had 3 deep vein clots in my leg in my lifetime. I were 50 mm support hose and a circaid. It doesn't really help. I have now been told by my doctor that I need to consider permanent disability as I just can't go back to work without terrible pain and swelling my legs. I am also on coumidan and lasix. I hope that social security recognizes this as a disabling condition because now after working all my life it looks like its over. Any one have any information on this?
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 12/04/2001 09:03 PM

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notshown

Posts: 1369

I too have been diagnosed with CVI. Mine problems are the result of DVT. One just within the last year. I am 49 years old and have had 3 deep vein clots in my leg in my lifetime. I were 50 mm support hose and a circaid. It doesn't really help. I have now been told by my doctor that I need to consider permanent disability as I just can't go back to work without terrible pain and swelling my legs. I am also on coumidan and lasix. I hope that social security recognizes this as a disabling condition because now after working all my life it looks like its over. Any one have any information on this?
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 06/19/2001 01:24 PM

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Randee12787

Posts: 5

Hi Renee, I have been suffering with CVI for about 10 years. Reason damage from bloodclots. It is the most frustrating thing. I wear compression about 90% of the time but I still have alot of swelling and pain. I am only 40 years old. So far two drs. told me nothing can be done. I am flying to CA this summer (I live in NJ) to see another specialist. Everything I read says no cure. I can understand your frustration, I live it everyday. If any comes of my CA visit I will keep in touch
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 05/16/2001 09:15 AM

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Renee12175

Posts: 8

I have been battling varicose as well as spider veins for years. For the last 4 yrs. I have been receiving the sclerotherapy injections. I was told this whole time that all I really had was spider veins and nothing to worry about. Well recently my ankle and lower leg started swelling and the vein clinic I have been going to for the last 4 yrs. coudn't see my for almost 2 months so I went to a vascular surgeon who had some tests done and on Mon. I was told I have Deep Venous Insufficiency. The Dr. told me this said it is a progressive disease and that I will have to wear a compression stocking on the affected leg for the rest of my life and then he sent me on my why. I am so fed up with drs. I don't think I should have been getting the injections this whole time but no one will tell me if it may have made this condition worse or what to do now. I have an appt. later in the month with the vein clinic that had been giving me the injections but now I don't trust them either. And what is this no real treatment for what I have? I am only 30 and I refuse to just let my leg get worse before somone does something. There isn't really much info. on what to do for this condition on the net either, no books , etc. I just want to know if anyone else out there has this condition and if so what are you doing for it? I am thinking of trying some homeopathic treatments in conjuction with my stocking. I mean if the stocking is the only treatment for me until my leg gets really bad with ulcers etc. than I feel I have nothing to lose.
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 05/16/2001 09:15 AM

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Renee12175

Posts: 8

I have been battling varicose as well as spider veins for years. For the last 4 yrs. I have been receiving the sclerotherapy injections. I was told this whole time that all I really had was spider veins and nothing to worry about. Well recently my ankle and lower leg started swelling and the vein clinic I have been going to for the last 4 yrs. coudn't see my for almost 2 months so I went to a vascular surgeon who had some tests done and on Mon. I was told I have Deep Venous Insufficiency. The Dr. told me this said it is a progressive disease and that I will have to wear a compression stocking on the affected leg for the rest of my life and then he sent me on my why. I am so fed up with drs. I don't think I should have been getting the injections this whole time but no one will tell me if it may have made this condition worse or what to do now. I have an appt. later in the month with the vein clinic that had been giving me the injections but now I don't trust them either. And what is this no real treatment for what I have? I am only 30 and I refuse to just let my leg get worse before somone does something. There isn't really much info. on what to do for this condition on the net either, no books , etc. I just want to know if anyone else out there has this condition and if so what are you doing for it? I am thinking of trying some homeopathic treatments in conjuction with my stocking. I mean if the stocking is the only treatment for me until my leg gets really bad with ulcers etc. than I feel I have nothing to lose.
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